119th Congress · introduced in the Senate · Feb 10, 2025
National Plan for Epilepsy Act
Official title from Congress.gov
Latest action (Aug 10, 2026): Held at the desk.
View on Congress.govPolicy area: Health
Congressional Research Service summary, version: Introduced in Senate (Feb 10, 2025)
National Plan for Epilepsy Act
This bill requires the Department of Health and Human Services (HHS) to establish a national plan, form an advisory council, and take other actions to address epilepsy. The requirements sunset on December 31, 2035.
Specifically, the bill requires HHS to carry out a National Plan for Epilepsy to prevent, diagnose, treat, and cure epilepsy. In carrying out the plan, HHS must implement activities such as coordinating research and services across all federal agencies and soliciting public comments.
Also, HHS must establish an Advisory Council on Epilepsy Research, Care, and Services. The advisory council must report to HHS and Congress every two years with an evaluation of federally funded efforts.
Additionally, HHS must annually report to Congress with recommended actions based on its assessments of the nation’s progress on epilepsy.
Includes amendment, cloture, and procedural votes. Each is labeled with its exact question; only a passage question is a vote to pass the bill.
No recorded roll calls on this bill in coverage.
Held at the desk.
Received in the House.
Message on Senate action sent to the House.
Passed Senate with an amendment by Unanimous Consent. (consideration: CR S4426-4427; text: CR S4426-4427)
Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.
Placed on Senate Legislative Calendar under General Orders. Calendar No. 526.
Committee on Health, Education, Labor, and Pensions. Reported by Senator Cassidy with an amendment in the nature of a substitute. Without written report.
Committee on Health, Education, Labor, and Pensions. Reported by Senator Cassidy with an amendment in the nature of a substitute. Without written report.
Committee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Read twice and referred to the Committee on Health, Education, Labor, and Pensions.
Introduced in Senate
Actions from Congress.gov, newest first.
Advisory bodies · Congressional oversight · Data collection, sharing, protection · Health promotion and preventive care · Medical research · Neurological disorders
LD-2 reports whose issue descriptions explicitly cite this bill (bill type and number validated against Congress.gov records). A citation does not establish the client's position or any contact with a member.
Loading lobbying reportsCoverage: reports for 2025 onward, posted Jan 1, 2025 through Oct 23, 2026.
19 citations.
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2026 Q3 report (Jul 1, 2026 – Sep 30, 2026) · posted Oct 21, 2026 · issue area: Health Issues
$90,000
Spent on own lobbying
-S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -P.L. 119-21, support policies and processes that reduce the impact of the cuts and changes to Medic…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
NATIONAL HEALTH COUNCIL · lobbying firm or registrant: NATIONAL HEALTH COUNCIL
2026 Q3 report (Jul 1, 2026 – Sep 30, 2026) · posted Oct 19, 2026 · issue area: Health Issues
$21,227
Spent on own lobbying
…ation Act. S. 2903/H.R. 5509, Safe Step Act. FY 2027 Labor, HHS, Education appropriations for programs affecting people with chronic diseases and disabilities. S. 494/ H.R.1189 National Plan for Epilepsy Act Senate Finance Committee RFI on Drug Pricing and Health Coverage H.R. 9599 SECURE 340B Act Discussion Draft - 340B Dru…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
AMERICAN MEDICAL ASSOCIATION · lobbying firm or registrant: AMERICAN MEDICAL ASSOCIATION
2026 Q3 report (Jul 1, 2026 – Sep 30, 2026) · posted Oct 19, 2026 · issue area: Medical/Disease Research/Clinical Labs
$4,540,000
Spent on own lobbying
H.R.1189 - National Plan for Epilepsy Act H.R.2767 - BRAIN Act, all provisions S.1330 - BRAIN Act, all provisions S.494 - National Plan for Epilepsy Act Comment Letter: [OMB-2026-0034] Regulation for Federal Financial Assistance Matters related to National Institutes of Health (…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION OF AMERICA · lobbying firm or registrant: CROSSROADS STRATEGIES, LLC
2026 Q3 report (Jul 1, 2026 – Sep 30, 2026) · posted Oct 19, 2026 · issue area: Health Issues
$30,000
Paid to lobbying firm
Funding for epilepsy program research at CDC, NIH, DoD; S.494/H.R.1189, National Plan for Epilepsy Act; FY2027 Department of Defense Appropriations Act (H.R.9495); FY2027 Departments of Labor, Health and Human Services, a…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
LUNDBECK LLC · lobbying firm or registrant: LUNDBECK LLC
2026 Q3 report (Jul 1, 2026 – Sep 30, 2026) · posted Oct 15, 2026 · issue area: Health Issues
$130,000
Spent on own lobbying
…ted to DTC advertising regulations Headache disorders treatment and research - H.R. 5536, HEADACHE Act of 2025 Research and services for epilepsy - H.R. 1189 & S. 494, National Plan for Epilepsy Act Issues pertaining to prior authorization - HR 9396, Prior Authorization Accountability Act Issues pertaining to transparency -…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2026 Q2 report (Apr 1, 2026 – Jun 30, 2026) · posted Jul 20, 2026 · issue area: Health Issues
$150,000
Spent on own lobbying
…id on people with serious and chronic conditions, people with disabilities, and caregivers -Budget Reconciliation Packages, oppose additional cuts to Medicaid -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passa…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION OF AMERICA · lobbying firm or registrant: CROSSROADS STRATEGIES, LLC
2026 Q2 report (Apr 1, 2026 – Jun 30, 2026) · posted Jul 18, 2026 · issue area: Health Issues
$30,000
Paid to lobbying firm
Funding for epilepsy program research at CDC, NIH, DoD; S.494/H.R.1189, National Plan for Epilepsy Act; FY2027 Department of Defense Appropriations Act (H.R.9495); FY2027 Departments of Labor, Health and Human Services, a…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
UCB, INC. · lobbying firm or registrant: UCB, INC.
2026 Q2 report (Apr 1, 2026 – Jun 30, 2026) · posted Jul 18, 2026 · issue area: Pharmacy
$710,000
Spent on own lobbying
H.R. 5509/S. 2903 - Safe Step Act H.R. 6423/S. 864 - HELP Copays Act H.R. 1189/S. 494 - National Plan for Epilepsy Act Drug Pricing
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
LUNDBECK LLC · lobbying firm or registrant: LUNDBECK LLC
2026 Q2 report (Apr 1, 2026 – Jun 30, 2026) · posted Jul 16, 2026 · issue area: Health Issues
$180,000
Spent on own lobbying
…ted to DTC advertising regulations Headache disorders treatment and research - H.R. 5536, HEADACHE Act of 2025 Research and services for epilepsy - H.R. 1189 & S. 494, National Plan for Epilepsy Act Issues pertaining to prior authorization - HR 9396, Prior Authorization Accountability Act Issues pertaining to transparency -…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2026 Q1 report (Jan 1, 2026 – Mar 31, 2026) · posted Apr 21, 2026 · issue area: Health Issues
$80,000
Spent on own lobbying
…d processes that reduce the impact of the cuts and changes to Medicaid on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passa…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION OF AMERICA · lobbying firm or registrant: CROSSROADS STRATEGIES, LLC
2026 Q1 report (Jan 1, 2026 – Mar 31, 2026) · posted Apr 20, 2026 · issue area: Health Issues
$30,000
Paid to lobbying firm
Funding for epilepsy program research at CDC, NIH, DoD; S.494/H.R.1189, National Plan for Epilepsy Act; FY2027 Department of Defense Appropriations; FY2027 Departments of Labor, Health and Human Services, and Education, a…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
LUNDBECK LLC · lobbying firm or registrant: LUNDBECK LLC
2026 Q1 report (Jan 1, 2026 – Mar 31, 2026) · posted Apr 16, 2026 · issue area: Health Issues
$130,000
Spent on own lobbying
…32, Give Kids a Chance Act of 2025 Headache disorders treatment and research - H.R. 5536, HEADACHE Act of 2025 Research and services for epilepsy - H.R. 1189 & S. 494, National Plan for Epilepsy Act
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2025 Q4 report (Oct 1, 2025 – Dec 31, 2025) · posted Jan 20, 2026 · issue area: Health Issues
$70,000
Spent on own lobbying
…olicies and processes that reduce the impact of these cuts and changes on people with serious and chronic conditions, people with disabilities, and caregivers -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage -Requests to join the Congressional Epilepsy Caucus -S. 2903/H.R. 5509, Safe Step Act, support passa…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
LUNDBECK LLC · lobbying firm or registrant: LUNDBECK LLC
2025 Q4 report (Oct 1, 2025 – Dec 31, 2025) · posted Jan 20, 2026 · issue area: Health Issues
$170,000
Spent on own lobbying
…32, Give Kids a Chance Act of 2025 Headache disorders treatment and research - H.R. 5536, HEADACHE Act of 2025 Research and services for epilepsy - H.R. 1189 & S. 494, National Plan for Epilepsy Act
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION OF AMERICA · lobbying firm or registrant: CROSSROADS STRATEGIES, LLC
2025 Q4 report (Oct 1, 2025 – Dec 31, 2025) · posted Jan 20, 2026 · issue area: Health Issues
$30,000
Paid to lobbying firm
Funding for epilepsy program research at CDC, NIH, DoD; S.494/H.R.1189, National Plan for Epilepsy Act. Support coverage of and access to all epilepsy treatments. Support PBM reform.
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
LUNDBECK LLC · lobbying firm or registrant: LUNDBECK LLC
2025 Q3 report (Jul 1, 2025 – Sep 30, 2025) · amended · posted Oct 28, 2025 · issue area: Health Issues
$140,000
Spent on own lobbying
…DTC advertising regulations Give Kids a Chance Act of 2025 H.R. 1262, S. 932 The HEADACHE Act of 2025 - H.R. 5536 National Plan for Epilepsy Act -- H.R. 1189, S. 494
Congress inferred from the report year; bill number matches Congress.gov records and the bill predates the report; no title was cited with it. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2025 Q3 report (Jul 1, 2025 – Sep 30, 2025) · posted Oct 20, 2025 · issue area: Health Issues
$60,000
Spent on own lobbying
…and processes that reduce the impact of these cuts and changes on patients, people with disabilities, and caregivers; Oppose cuts to the Affordable Care Act. -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -Requests to join the Congressional Epilepsy Caucus. -S. 2903/H.R. 5509, Safe Step Act, support pas…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2025 Q2 report (Apr 1, 2025 – Jun 30, 2025) · posted Jul 21, 2025 · issue area: Health Issues
$60,000
Spent on own lobbying
…aries and restrictions on provider taxes; Oppose cuts to the Affordable Care Act; Support inclusion of the Accelerating Kids Access to Care Act and PBM reform -S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatmen…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing
EPILEPSY FOUNDATION · lobbying firm or registrant: EPILEPSY FOUNDATION
2025 Q1 report (Jan 1, 2025 – Mar 31, 2025) · posted Apr 18, 2025 · issue area: Health Issues
$160,000
Spent on own lobbying
S. 494/H.R. 1189, National Plan for Epilepsy Act, support passage. -S. 864, HELP Copays Act, support passage. -Support coverage of and access to all epilepsy treatmen…
Congress inferred from the report year; bill number and the title cited with it match Congress.gov records, and the bill predates the report. The amount is lobbying spending for every issue on this report, not this bill alone, and none of it is paid to any member of Congress. View filing